How I Fight

As a patient advocate for Lymphatic Education & Research Network, my good friend Liny and myself were there to support Kathy Bates during her testimony on Capitol Hill  before the House Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies  (Click here to watch her testimony)

My son Jake asked to skip school on his 18th Birthday to provide his testimony and experience of living with a father struggling with lymphedema.  He brought us to tears. "During most of my childhood, I woke every morning hoping not to find my Daddy dead!"  The patient is not the only one who suffers...

My lymphedema family cutting the ribbon for the DC Walk and Rally in March 2019.  Family....it truly is a family.   We have cried, laughed, lost, struggled, AND FOUGHT this battle against the lack of knowledge of the lymphatic system and treatment for lymphedema and lymphatic disorders

COVID didnt stop the advocacy.  It just changed how it is done.  I am on the phone with one of my Senators in North Carolina.  This is how everyone can and should be advocating along with emails.  Anyone means EVERYONE!

My wife Jen (also a veteran) and good friend Kathy at the DC Walk and Rally.   My wife has been an amazing source of strength and support during my battle with the horrible disease since 2005.  I would not be here without her.   

The first time I was really allowed to share my journey and I did it, thanks to the Lymphatic Education and Research Network, while standing in front of the Lincoln Memorial in Washington DC